Ava’s Medical Appointments

I got a lot of questions about what’s going on and why we’ve had tests done at the hospital for Ava. I wanted to let all my friends know that there’s nothing terribly wrong with Ava, and she’s not “sick” per se. I just don’t want all of her medical past out there for everyone to see. I also password protected this post because it’s really all about Ava and her GI issues. If you’re not into hearing about loose stools, this may not be the post for you.

Ava was diagnosed with a dairy protein intolerance at 6 months old. The poor thing was having terrible diarrhea, but no one (read=doctors) really wanted to listen to me because they thought I was some overly anxious new mom. If you know me, you know I’m not a person that has these types of issues. I’m pretty even, never getting overly worried or excited, in good or bad times. Finally, I showed up at the doctor one morning for open hour and told them I wasn’t going anywhere until they told me what was wrong with my baby. They refered me to a pediatric GI specialist and that’s where we got our diagnosis.

Fast forward 5 years. Ava is better than she used to be, but far from what I would consider normal. She often has stomach cramps and loose stool. Some weeks are better than others. I know dairy still has an effect on her, but I’m not sure to what extent or whether is the dairy protein or lactose. She now has a complete aversion to most dairy.

What was starting to concern me is that I feel like her growth has slowed in the last year. I know that kids’ growth does slow as they get older. I don’t expect her to be growing at the rate she was when she was 2. Ava was always in the 95% or higher for height and weight when she was younger. She’s been falling on that scale since she was about 3.5 years. Again, I don’t expect she would stay in the 95-98% her whole life, but I know some of our friends kids’ have pretty much stayed at the same level as they’ve gotten older. Even someone like Binh, who isn’t even on the scale has his own trajectory that he’s stayed on. Ava has fallen over time to the 50% for weight, and her height is only slightly higher. She seems thin and she’s not exactly the most active kid where she would be burning all these calories.

I took her to a GI specialist here on Wednesday. She confirmed that Ava is thinner than she likes to see for her height. She did an x-ray and ordered blood work and a test for Celiac disease the next day at the hospital. So that’s what we’ve been up to. So far, the x-ray showed she has a lot of stool that isn’t moving (I almost don’t even see how that’s possible, but I saw it for myself), and the test yesterday confirmed that she doesn’t have Celiac. Now, we’re waiting on the blood work and to see what to do next.

So that’s where we are with Ava. She’s happy, smart, and funny as anything, but she has tummy troubles. Pray that we are able to find some resolution for that.


4 Comments (+add yours?)

  1. Lauren Cristina Vitrano-Wilson
    Dec 30, 2011 @ 01:40:40

    Will pray for her and you guys to have wisdom. My best friend from high school has ciliac’s…you probably know people already who have it, but if by some chance you don’t and you want to talk to a regular person as well (regular, yet super smart) let me know. But yes, I’ll pray.

    Oh and by the way…no Thai child is even close to being on the American chart eitehr, so in Vietnam…who knows Binh might be the same height as the other kids his age.

    p.s. do you see these comments?


  2. Tracy @ My Minivan Rocks!
    Jan 03, 2012 @ 18:33:18

    I hope you get some answers soon. Noah had a milk AND soy protein intolerance as an infant and ended up on a formula that cost $10 a day. Luckily he has outgrown it.


  3. asmalltowndad
    Jan 04, 2012 @ 18:56:33

    I feel for her Sis and Taylor and Jordan has and still is going through the same symptoms. We have tried the lactose, celiac, and yet have found a consistent answer. It’s extremely embarrassing to them because of visiting a boy friends house or a friends house and having a “emergency.” I think nerves and stress has a lot to do with it, in addition to a stealthy physical condition. Let me know what you find out. Love you all!


  4. 1beautifulmess
    Jan 15, 2012 @ 22:07:42

    Read this while in China via yahoo, but could not get on your blog, so was not able to comment. Praying for Ava and hope you have found some answers. Please give her a hug and kiss from me and Izzie!


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